Journey with a Special Needs Child

A very dear friend of mine sent me the link to this sermon a while back but I just recently had the opportunity to watch–WOW!  I hope you take the time to listen to this sermon because I think everyone could find something valuable from God’s word.

Willow Creek [New Lenses: Journey with a Special Needs Child]

I will share that he mentions parents of special needs children feel that their child will be invisible to this world.  I have to say that is one of my fears for Reese McClain.  You hear of parents worrying, complaining about all the activities their child is involved with or how they hope their child gets this or that scholarship/job/position–the list goes on and on.  I sit there thinking–I wonder if Reese McClain will even be noticed in this world, will she have a purpose.  Then I slap myself back into reality and realize that all those are “worldly views” and those that the world sees as least is who God sees as most.

Reese McClain cannot communicate “I love you mommy” or “I love you daddy” but I know when I say “Reese McClain do you love your mommy” and her face lights up, she smiles and let’s me kiss her face off–she does love me!  I’m slowing learning that the value of a person has nothing to do with our ability but our heart/relationship with Christ. When the world tells you “perfection” is what is desired it’s really hard to see imperfection as perfection–but I believe that is what God wants us to do.

Reese McClain is on the MOVE

Life gets so busy sometimes you just need to slow down and enjoy what is happening around you!  Well, Reese McClain is crawling and we are ENJOYING!!!

Her sitter (Juju) reported she saw it on August 16th and then that evening Kyle and I took RMN to PT in Louisville and Amy (therapist) reported that she crawled during therapy.  Kyle and I were so excited even though we had not gotten to see her move in person.  However, she started moving that weekend!  It’s slow… but its progress.  I feel like it’s the same experience we had with her sitting up by herself.  She would do a little… sometimes follow thru, sometimes not… but once she got the hang of it… she wanted to sit up all the time!  I will never forget going to get her out of her crib one morning and she was sitting up clapping.  I never thought that day would come… what a glorious day!  I firmly believe that her moving is going to make her stronger and stronger.  She is reaching and trying to pull up on doorways, chairs, coffee tables—which is also VERY exciting.  I have had some ask “what do you believe has helped Reese”?  The number one thing that I think has made a difference is prayer–trust in God.  Thank you to each of our faithful friends for the continual pray for Reese’s progress–we cannot do this journey without you.

I’m going to be real honest—trusting God is hard!  For those that don’t know me… well, I like to be in control of things.  I’m a planner, organizer and must be prepared going into situations.  So, trusting someone who I cannot physically see  or talk things out with in person… is hard!  However, I continually relay on scripture and what the bible is telling each and every one of us.  I read the other day:  Salvation secures our lives for all eternity.  Soul satisfaction ensures abundant life on earth. He satisfies you with goodness; your youth is renewed like the eagle.  Psalm 103:5   We each can find goodness in God no matter our situation   I never in one million years thought I would have a special needs child or been in and out of the hospital with a child like I have experienced but I continually tell God–You have an amazing plan [one much bigger and better than mine] and I must trust you.


The most precious little view ever–Reese McClain on the MOVE!